The Genetic Privacy Act and commentary
The Genetic Privacy Act is a proposal for federal legislation. The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. Therefore, to effectively protect genetic privacy unauthorized collection and analysis of individually identifiable DNA must be prohibited. As a result, the premise of the Act is that no stranger should have or control identifiable DNA samples or genetic information about an individual unless that individual specifically authorizes the collection of DNA samples for the purpose of genetic analysis, authorized the creation of that private information, and has access to and control over the dissemination of that information.
- Research Organization:
- Boston Univ., MA (United States). School of Public Health
- Sponsoring Organization:
- USDOE, Washington, DC (United States)
- DOE Contract Number:
- FG02-93ER61626
- OSTI ID:
- 171293
- Report Number(s):
- DOE/ER/61626-T1; ON: DE96004089; TRN: AHC29602%%56
- Resource Relation:
- Other Information: PBD: 28 Feb 1995
- Country of Publication:
- United States
- Language:
- English
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