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Title: Problematizing “Planning Ahead”: A Cross-Cultural Analysis of Vietnamese Health and Community Workers’ Perspectives on Advance Care Directives

Journal Article · · Qualitative Health Research

Informed by values of autonomy and self-determination, advance care planning assumes that individuals should independently take control of their future health. In this article, we draw on research conducted with Vietnamese health and community workers to problematize individualized approaches to planning ahead, reframe notions of “cultural and linguistic barriers,” and expose how homogeneous messages about care at the end of life are not readily translatable within and across diverse groups. Anthropological and feminist critiques of inclusion and exclusion are used to reorientate Anglophone framings of the individual and of cultural and linguistic differences. In this article, we suggest that it is the narrow singularity of care for the self—rather than diverse relationalities of care—that should be overcome if aging and end-of-life care policy and practice is to be broadened and made relevant to migrant and non-English-speaking groups.

Sponsoring Organization:
USDOE
OSTI ID:
1812385
Journal Information:
Qualitative Health Research, Journal Name: Qualitative Health Research Journal Issue: 12 Vol. 31; ISSN 1049-7323
Publisher:
SAGE PublicationsCopyright Statement
Country of Publication:
Country unknown/Code not available
Language:
English

References (46)

The use of living wills at the end of life. A national study journal May 1996
Understanding collective agency in bioethics journal March 2016
Chinese seniors’ perspectives on end-of-life decisions journal August 2001
Cultural Factors Influencing Advance Care Planning in Progressive, Incurable Disease: A Systematic Review With Narrative Synthesis journal October 2018
An advance directive redesigned to meet the literacy level of most adults: A randomized trial journal December 2007
Discussing dying in the diaspora: Attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia journal January 2014
Dependency denied: Health inequalities in the neo-liberal era journal October 2014
Short horizons and obesity futures: Disjunctures between public health interventions and everyday temporalities journal March 2015
Forecasting and foreclosing futures: The temporal dissonance of advance care directives journal October 2018
Patient autonomy and participation in end-of-life decision-making: An interpretive-systemic focus group study on perspectives of Asian healthcare professionals journal November 2019
Truth telling and advance planning at the end of life: Problems with autonomy in a multicultural world. journal January 2002
Bridging cultural differences in medical practice journal February 2000
Language Barriers to Health Care in the United States journal July 2006
The 'right story' to the 'right person': communication issues in end-of-life care for Indigenous people journal January 2005
It’s just too hard! Australian health care practitioner perspectives on barriers to advance care planning journal January 2013
Structural Vulnerability and Health: Latino Migrant Laborers in the United States journal July 2011
Deciding one’s own death in advance: Biopower, living wills, and resistance to a legislation of death with dignity in Japan journal January 2020
Association Between Region of Birth and Advance Care Planning Documentation Among Older Australian Migrant Communities: A Multicenter Audit Study journal August 2020
Moving beyond the Janus Face of Integration and Diversity Discourses: Towards an Intersectional Framing journal May 2013
Advance care planning for Māori, Pacific and Asian people: the views of New Zealand healthcare professionals journal December 2013
Linguistic incompetence: Giving an account of researching multilingually journal November 2013
Advance care planning in Australia during the COVID‐19 outbreak: now more important than ever journal August 2020
Death brokering: constructing culturally appropriate deaths journal November 2005
The Influence of Cultural Individualism-Collectivism, Self Construals, and Individual Values on Communication Styles Across Cultures journal June 1996
The Role of Identity in Acculturation among Immigrant People: Theoretical Propositions, Empirical Questions, and Applied Recommendations journal January 2006
Community-Based Participatory Research From the Margin to the Mainstream journal May 2009
The effects of advance care planning on end-of-life care: A systematic review journal March 2014
Matters of care in technoscience: Assembling neglected things journal December 2010
The Use of Advance Directives in a Population of Asian Indian Hindus journal January 2003
Ethics and Advance Care Planning in a Culturally Diverse Society journal July 2009
Family Surrogate Decision Making at the End of Life: Seeing them Through with Care and Respect journal February 2004
Developing Theory From Complexity: Reflections on a Collaborative Mixed Method Participatory Action Research Study journal March 2008
Listening to Rural Hispanic Immigrants in the Midwest: A Community-Based Participatory Assessment of Major Barriers to Health Care Access and Use journal March 2008
Negotiating Biomedical and Traditional Chinese Medicine Treatments Among Elderly Chinese Singaporean Women journal September 2014
Engaging a Community Leader to Enhance Preparation for In-Depth Interviews With Community Members journal August 2018
Listening to the Voices of Community Health Workers: A Multilevel, Culture-Centered Approach to Overcoming Structural Barriers in U.S. Latinx Communities journal July 2019
Tool for the Meaningful Consideration of Language Barriers in Qualitative Health Research journal July 2019
The (Co)Production of Difference in the Care of Patients With Cancer From Migrant Backgrounds journal June 2020
Individualising difference, negotiating culture: Intersections of culture and care journal February 2019
Beyond dialysis decisions: a qualitative exploration of decision-making among culturally and linguistically diverse adults with chronic kidney disease on haemodialysis journal November 2018
The experience of interpreter access and language discordant clinical encounters in Australian health care: a mixed methods exploration journal September 2018
Radical Care journal March 2020
Language Proficiency, Use, and Maintenance among People with Vietnamese Heritage Living in Australia journal June 2019
The ‘Culturally and Linguistically Diverse’ (CALD) label: A critique using African migrants as exemplar journal December 2018
Worshiping Autonomy journal November 1996
Difficult but necessary conversations — the case for advance care planning journal November 2013

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