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Title: Toward unrestricted use of public genomic data

Journal Article · · Science

All public funding agencies and foundations that support the generation of new data have a data release policy. Some policies require the immediate public release of the produced data, so that everyone will benefit equally from their availability, while other agencies have policies that allow data to be kept private until their initial publication so that the investigator(s) collecting the data have precedence. To address the issues of sharing genomic data, particularly the sharing of pre-publication data, biomedical scientists agreed upon and created a public declaration in 2003, which came to be known as the Fort Lauderdale Agreement (1). This declaration supports the free and unrestricted use of genome sequencing data by the scientific community before those data are used for publication. It proposed that the scientist leading the generation of new data should “make the data generated by the resource immediately and freely available without restriction”. The agreement encouraged users of publicly released data to “appropriately cite the source of the data analysed and acknowledge the resource producers”. Moreover, it recommended that the users of the data should “recognize that the resource producers have a legitimate interest in publishing prominent peer-reviewed reports describing and analyzing the resource that they have produced”. The above recommendations led to the wide adoption of general standards, whereby the scientists that lead the generation of new data retain the “rights” to first publication even after the data become publicly available.

Research Organization:
Pacific Northwest National Laboratory (PNNL), Richland, WA (United States)
Sponsoring Organization:
USDOE
DOE Contract Number:
AC05-76RL01830
OSTI ID:
1501820
Report Number(s):
PNNL-SA-140849
Journal Information:
Science, Vol. 363, Issue 6425; ISSN 0036-8075
Publisher:
AAAS
Country of Publication:
United States
Language:
English

References (15)

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Cited By (9)

Distributed Ledger Technology in genomics: a call for Europe journal September 2019
Separate authorship categories to recognize data collectors and code developers journal November 2019
Clinical promise of next-generation complement therapeutics journal July 2019
‘Stealth’ corporate innovation: an emerging threat for therapeutic drug development journal September 2019
Springboard to science from the ‘Worn Out Niche’ of a research resource‐limited environment: Greece must get serious about research and development journal October 2019
A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing journal May 2020
Establishment of computational biology in Greece and Cyprus: Past, present, and future journal December 2019
Distributed Ledger Technology in genomics: a call for Europe text January 2020
Three challenges to contemporaneous taxonomy from a licheno-mycological perspective journal January 2020

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