Spheres of influence: Ethical, legal, and social issues of the Human Genome Project: What to do with what we know
- Alexandria, VA (United States)
Since fiscal year 1991, the U.S. Human Genome Project has spent $170.6 million in federal funds to help isolate genes associated with Huntington's disease, amyotrophic lateral sclerosis, neurofibromatosis types 1 and 2, myotonic dystrophy, and fragile X syndrome and to localize genes that predispose people to breast cancer, colon cancer, hypertension, diabetes, and Alzheimer's disease. Now come the hard part. Biology's 21st century megaproject starts to look relatively manageable compared to another challenge facing the enterprise: sorting out ethical, legal, and social issues associated with using this information. [open quotes]The Human Genome Project,[close quotes] wrote Senior Editor Barbara Jasny in the October 1 Science editorial, stretches [open quotes]the limits of the technology and the limits of our ability to ethically and rationally apply genetic information to our lives.[close quotes]
- OSTI ID:
- 6902745
- Journal Information:
- Environmental Health Perspectives; (United States), Vol. 102:1; ISSN 0091-6765
- Country of Publication:
- United States
- Language:
- English
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